Happy Monday and Have You Seen This Harvard Study?

Hi my lovelies <3. Happy Monday. It is beyond frigid today in Massachusetts and the wind is whipping SO hard, it actually sounds like a train whistle. So today, I am grateful to have a Husband who works hard to take care of me/us. I am grateful that my Husband works for Verizon, whose pay, health and family benefits are second to none. And I’m grateful to my house for sheltering us from the wind and cold. I’m grateful for a bunch of other things, too, but that’s a whole different post.

I’m working on a research based post right now, but I wanted to make sure I shared this in the interim……

Have you seen this Harvard study that used PET scans? It has determined (once and for all) that people with fibromyalgia have widespread inflammation in their brains!!!!

Determining this may set the path for new drugs and treatments to *finally* be developed!!!

https://www.webmd.com/fibromyalgia/news/20181004/fibromyalgia-pain-is-real-brain-scans-

Love Stace

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Fighting with Fibro and Living With Purpose. Mom, Wife, Blogger and animal lover. Fighting with Chronic Illness on a minute by minute basis; sometimes winning.

9 thoughts on “Happy Monday and Have You Seen This Harvard Study?

  1. And did you read the next to last paragraph of this study? They have learned nothing about treating a chronic pain patient. Yes, there may be glia cells inflamed. You can also see increased pain signals in an MRI. Always ask yourself what are they attempting to prove with the completion of a ‘study,’ what is the theory they want to prove? Harvard is known for conducting studies, based on individuals they think will prove their theory. It was Harvard that came up with the original food pyramid… that didn’t work out so well. Not to tread on your hopes, this is another great way to test for fibro so people don’t wait years for a diagnosis. The bottom line for this test was not for diagnostic purposes, however. That makes me very nervous!

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    1. My single and most important take away from this article is the data that demonstrates a physiological marker.

      How many time have sufferers had it suggested “it could be mental”??….I think this study and the fact that it comes from Harvard, gives good credence to many who admonish themselves for not being able to think themselves better or for the many who have been accused of being fakers.

      Liked by 1 person

      1. I so hope you are right! So, if we count we have a blood test, the FM/a. The MRI, and this test. Diagnosing should be much easier. And you are right, people love the latest Harvard study, a PET scan. I was not trying to undermine the importance of finding better tests to diagnose fibro. Sorry if it came out wrong, Stace! No excuse but I’m on a week long flare… yuk!

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      2. No worries, at all, Kim 🙂 We’re good!
        We all have our opinions and thoughts. I’m glad you share yours!!

        We could go on all day about diagnostics, the lack of research and funding dollars, the lack of any worthwhile drugs and treatments, providers, the lack of knowledge surrounding pain patients, couldn’t we?? (I forgot some debatable items….hmmm)
        But, just what you said, people love Harvard. It gives credibility to the disease as a physiological one. I know *I* have been called a Drama Queen and a Faker…….
        And, while promising treatments may still be ten years away (or more), giving our illness any attention will help towards just that.

        I’m so sorry about your flare. Yuck. They are so disheartening. I hope you get some relief soon (OMG I almost said “get well”-insert eye rolls here). Glad to see you still have your fire!! LOL

        Liked by 1 person

  2. I have always believed there was a physiological element and this study is validating. It would be useful to use pet scans and MRI’s as diagnostic tools but because of the cost I feel they won’t be ordered often. Research for FM, ME and several of the autoimmune diseases have been sorely lacking due to females representing the larger portion of patients. It was so much easier to just classify women as hysterical, attention seeking, drama queens or hypochondriacs than to treat them as human beings with real diseases. Times are finally changing now that medicine is becoming less male dominated. Now if the researchers can get it together enough to come up with a CAUSE and a solution for that…

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    1. I agree on a few of your points, Gail. And yes, MRIs and PET Scans could be cost prohibitive; especially for those without significant or any insurance. For me, I was grateful to see just the fact that the PET scans had quantifiable physical proof that Fibro is not solely psychological-although certainly, I think many of us tend to develop psychological struggles as a direct result.
      As for a cause, I’m not necessarily sure they can ever truly determine a specific cause. Much of the research I come across says that both Fibro and CFS/ME have “trigger events”. So when asked, I typically feel that my Fibro was dormant and triggered. Who knows what actually makes those of us with Fibro be disposed to it, I guess that is a mystery. Same, really, for CFS. Many times they say it can be caused by the Epstein Barr virus, which I do test positive for-but so does an incredibly high number of the population, too. So once again, it seems like there was something that “turned it on”. I’m grateful when I see these studies, regardless of the underlying motivations to them, because at least they are calling attention to our illness, but they also legitimize those same illnesses. Research dollars for both Fibro and CFS are considerably lacking, especially when compared with Cancer. I’m hoping the more research we see, the more we’ll get. As for medications and treatment, I’m not too hopeful yet, but maybe as time goes on and more attention gained, more efforts then will be poured into developing such.
      Thanks for commenting, Gail!! ~Stace

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    1. Welcome!!! I”m so happy to have you! Me too, I totally agree! At the very least, with each new study and each new “press release” we gain visibility and a voice. Every little bit counts!

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