Chronic Illness Is…..

Chronic illness is not just constantly being sick.

It is fearing that “this” spell will be the one that lands you bedridden for a year, again.
It is being treated like a hypochondriac by Doctors.
It is losing all trust and confidence in yourself.
It is being delivered life altering diagnoses, coming to grips with them and then having them completely changed again.
It is worrying that you’ll miss the signs of something catastrophic, because you never, ever, feel well anyhow.
It is the terrifying fear of living “like this” forever.
It is the paralyzing panic of being wholly dependent on other people to take care of you, fearful of anything happening to them.
It is an overshadowing gloom that minimizes the happiest of occasions, because you never know if you’ll be too sick for them.
It is the look of pity or disdain when you can’t speak, fall over, faint, have a panic attack, can’t walk or use a handicap spot.
It is the deep feeling of dread that today may be the day they take away your pain meds because the opioid crisis won’t separate pain patients from heroin addicts.
It is never knowing which illness or medication, is causing which symptoms, when you have multiple conditions.
It is giving up showering alone, driving, tennis, leisurely shopping with your daughter and hanging out with friends.
It is having your Husband come running, every time there’s any unfamiliar noise, fearful you’ve fallen again.
It is the countless offerings of anecdotal advice that losing/gaining weight, giving up gluten or doing a cleanse will cure you.
It is the covering Doc, you’ve never met, telling you that pain pills don’t work, but Tai Chi will.
It is the shame of needing those pain pills, simply to function.
It is the countless times you’ve instilled hope in a new treatment, medication or provider, only to be disappointed again, when they fail.
It is the constant gnawing that “maybe if I just tried harder”.
It is napping away vacation, because illness never takes one.
It is knowing that someone needs you, but being too sick to go.
It is the inability to do rudimentary tasks such as food shopping, driving or attending appointments without help.
It is cracking your teeth from clenching them so hard every time the pain hits.

It is also the fortitude, tenacity and grace, to get up each day and try again, despite all these things.
Keep trying, keep fighting, keep getting up. It is worth it.

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Fighting with Fibro and Living With Purpose. Mom, Wife, Blogger and animal lover. Fighting with Chronic Illness on a minute by minute basis; sometimes winning.

17 thoughts on “Chronic Illness Is…..

  1. As someone with a chronic illness I can relate to every word. Every Illness is different, but that feeling of having your life slip through your fingers because you can’t keep up with “normal” society is real. Keep Fighting!

    1. Glad you can relate! It is super tough sometimes, feeling like your life goes by while you nap-I totally get it! It’s one of the really tough aspects, right? Thanks for the encouragement, you keep fighting too! We’ve got this! (Sort of 😉)

  2. Oh how I am feeling this today. Feeling like the fight is too hard at the moment but knowing I will still fight tomorrow because my kids need me to…even if my fight is just staying awake in bed for the day and listening to them play x

    1. I went through that a lot when my kids were younger. But you’re absolutely right, just the act of being awake and having them know you’re there IS being there. Sometimes, that’s all we can offer. There have been so many days that I thought I could never get through-but I did. Our strength and tenacity really is amazing, even when we don’t feel like it is. It gives us the ability to fight for another day, even when it feels like we’ll never make it! You’re doing great, Stacey!! ❤️

    1. Oh, I’m sorry to hear that. It’s so discouraging. I’ve been going through that myself lately. And while it is super discouraging, it’s amazing how much you still do accomplish, despite being so sick and exhausted, Michelle! Hang in there, kiddo!! It will turn around again (sort of 😉) ❤️

  3. Thank you Stacey. As always everything you share totally resonates with us all. We keep pushing forward together!
    God bless you. 🙏🏻❤️

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