A Reflection From a Decade of FightingWithFibro…

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Fighting with Fibro and Living With Purpose. Mom, Wife, Blogger and animal lover. Fighting with Chronic Illness on a minute by minute basis; sometimes winning.

12 thoughts on “A Reflection From a Decade of FightingWithFibro…

    1. Amen to that, Mel!

      It’s scary just how intense pain can be. I’m not sure what’s worse – the continual hum of pain that drives us to distraction, or the more intense periods that we feel could kill us?


      1. I’m so lucky to be living without high levels of pain right now. Thanks goodness because my immuine system is so fragile that anything could put me in the hospital. I don’t need more pain on top of that right now. I’m still taking three Tramadol a day but that’s nothing compared to 8-10 a day.

      2. Ugh. I’m stuck in the 6 a day cycle…..I had been so happy to be down to as low as 3, now I’m right back up again. Thank God (quite literally) for Tramadol. Without it, I cannot imagine.
        I’m SO happy your pain levels are down!! I hope you’ve been able to take advantage of that, somehow, despite Coronavirus.
        And I’m with you on living in the bubble…..Anything outside my careful little bubble runs the risk of a flare. It’s crazy!
        Take good care of yourself. Wishing you well ❤️

      3. Gee, what a choice, Caz LOL but I hear ya! The constant buzzing in the background is equally miserable. Sometimes, when I have those super rare pain free minutes or hours, I just have to sit and soak it up in amazement.
        I miss the days when my choices consisted of which heels to wear to work in the morning.

        I didn’t necessarily mean that reflection to have such a negative connotation. More that we live with and through so much, it’s amazing how strong we are……

        And I’m telling ya, Caz, there’s been nights I really felt like I was dying……it was kind of shocking I didn’t. The mind is a very dangerous place with constant pain……

  1. What is hard is when the pain is intense and others do not seem to understand. You try not to complain but the pain is screaming at you and it all you can do to maintain your sanity. Others will suggest that you do some exercise or take an ibuprofen and or use a heating pad. You will have done that and it is of no use. Others will not understand because it is an “invisible” health issue. only it isn’t invisible to you.

    1. Well put, Maureen. Life is a constant battle when you live in constant pain. I think it’s impossible for anyone to comprehend.
      As for the Yoga & ibuprofen nonsense; it makes me crazy. As if I haven’t tried a million things to get well…..it’s insulting to have people insinuate that making simple changes would cure us. As if we don’t want to be better 🙄
      And that’s just it. I’m always told how good I look-but what’s the alternative?…..cry and scream when I’m in public or on the rare instance I go out?…..
      I try to keep in mind that even I could never have comprehended living like this or living with literal constant pain.
      As for the sanity, it’s a fleeting thing. I can only handle so much pain, for so long, before I have to sit and cry….sometimes, I genuinely don’t know if I can handle it for even five more minutes.
      It’s amazing, I always do get through it though.
      I understand ❤️

  2. I’m coming up on my 10 year anniversary of my diagnosis too! It is in October! I am so much better than when first diagnosed. I am lucky that I can take meds that help!

    1. I’m so glad you’re better and that meds help you, Cheryl!!!
      If I look at it that way, I’m “better” too, I suppose. In the earliest days, I spent 18 months in bed.
      I’m grateful to at least have Tramadol to take the edge off. Beyond that, nothing else helps or works.
      LOL, I guess my stubbornness applies at all facets of my existence, right?
      Ugh, I can’t say happy anniversary to us…..

  3. I’m so sorry Stace. When the pain is so excruciating, it’s hard to believe that it’s not life-threatening, isn’t it? I was convinced for months that I was going to die. Once I realized I wasn’t, I was able to start taking those small steps to feel better. I think we may always have those ‘scary’ pain episodes, but at least now we recognize them for what they are. Sending gentle hugs sweet friend.

    1. Nothing to be sorry for, Terri. We all go through it, right? Just as you just said.
      I’m sometimes amazed I do live through it……sometimes I don’t think I can endure even five more minutes.
      But, I always do.

      You’re so right though. In the beginning, we’d end up at the ER, only to feel silly and embarrassed when everything was fine…..or I’d endlessly be at the Doctor’s.
      So it’s better now, in that aspect, that we know it’s “just the Fibro”. It’s insane how intense the pain can be from just that.
      Glad you’re better ❤️

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