The thing about living with chronic illness is that I LIVE for the two, sometimes three, days a week that I get to spend off the couch. I relish in them. Those days give me a chance to live and feel like a human again. So what happens when those days no longer come?
Read More
The “H” word. Hope is sort of a double edged sword for me, like it is for so many others, I’m sure. In the last decade of being sick, we estimate I’ve seen about 35 Doctors and Specialists, received countless diagnoses, tried too many medications to count, all with the initial promise that they were […]
Read More
Hi everyone!! I hope it’s not as gray and gloomy where you are. The constant rain and gray don’t help my mood much. The beginning of the week was so beautiful, we actually got out into the gardens and got the gazebo up. Which was awesome. I couldn’t help but to think how just last […]
Read More
I’d like to do a “compilation” Blog Post and was wondering if you would please be willing to help? It’s only three questions: Do you get “brain”fog? If so, can you describe it? What, if anything, helps you better manage it? I *really appreciate your input!! ️Stace
Read More
So, first of all, Merry Christmas and/or Happy Holidays. For I think, the first time ever, I am ready for Christmas ahead of time. Which is pretty remarkable considering the week I just spent in bed. We still have food shopping and cooking/baking to do, but that’s it. It makes the last week of the […]
Read More
How many of you suffer from medication sensitivity? I know I do. Which has been part of how I ended up trying Botox for my chronic headaches and migraines. I have tried countless other medications, which either don’t work or have had violent side effects. So when my Neurologist insisted, for over a year, that […]
Read More
I hesitated to even write this blog post. Everywhere we look are Christmas ideas and suggestions from everyone. However, you never can tell when you may spot an idea you hadn’t yet thought of. While I am a “spoonie” (still looking for a replacement for that dreadful word), I am also still a woman who […]
Read More
Often, the true complexities of living with chronic illness are overlooked or never addressed. But just because that happens, doesn’t mean it should.
Read More
The thing about trauma is it never goes away. You push it down, plow through it, ignore it or just completely shut down from it, but you never get over it.
Read More
Somehow, self care has turned into a dirty little word that means we’re selfish and self indulgent to put ourselves first.
Read More